Stand Still, Stand Strong

I have had many conversations with friends, family, neighbors, and  employees regarding different challenges they are facing in their life.  I try to comfort and encourage them by Reminding them that for all things there is time.  As is stated in the text from 

Ecclesiastes 3:1-11

“To every thing there is a season, and a time to every purpose under the heaven: A time to be born, and a time to die; a time to plant, and a time to pluck up that which is planted; A time to kill, and a time to heal; a time to break down, and a time to build up; A time to weep, and a time to laugh; a time to mourn, and a time to dance; A time to cast away stones, and a time to gather stones together; a time to embrace, and a time to refrain from embracing; A time to get, and a time to lose; a time to keep, and a time to cast away; A time to rend, and a time to sew; a time to keep silence, and a time to speak; A time to love, and a time to hate; a time of war, and a time of peace.

What gain has the worker from his toil? I have seen the business that God has given to the sons of men to be busy with. He has made everything beautiful in its time; also he has put eternity into man’s mind, yet so that he cannot find out what God has done from the beginning to the end.”

No matter what troubles we are facing we can be comforted in knowing that the troubled times will come to an end and God will deliver us to a better, more fruitful time.

I share this not just to regurgitate memorized bible verses, but because I experience God strengthening me every day.

Just recently I had a day that was just filled with unfortunate events.  First, I was confronted by a woman that called me horrible things, and on my way home was in a car accident that resulted my car being totaled.

I won’t lie, I felt angry and overwhelmed, but I calmed myself by remembering that God is with me. Although he won’t always save me from the fire, he will help strengthen me and reassure me that I won’t get burnt.

Knowing this helps me to face the challenges and take the necessary action to get through the difficult time, and when it’s all over I can hear him telling me “See, I knew you could do it, just believe in yourself, and believe in me. I am always with you and will not fail you.”

You can hear him too, all you need to do is Stand Still, and Stand Strong in Faith! 

“Don’t be Afraid. STAND Firm, and you will see the deliverance the Lord will bring you today. The Lord will fight for you, you need only be still” Exodus 14:13-14

Building Bridges

Every generation comes to a cross roads of needing to re-examine our definitions of equality, inclusion, love, freedom, forgiveness. Many have paved the way for us to have the freedoms we so easily take for granted today. I thank those trailblazers that did the heavy lifting to ensure my boys have access to early intervention programs today. I appreciate the awareness that has been raised and has allowed my boys to receive the treatments and therapies that they need in order for them to function in our society.
Due to the awareness that has been raised, we are fortunate to have special events and programs that are tailored to children with Special Needs. When my sons were diagnosed with Autism and I was unsure of what the journey would be like, I felt relief to be able to find programs that were exclusively for children like them. Being in these environments always made me feel safe and accepted. It is always more comforting being around others that are going through similar experiences. Although it is important for my boys to have a solid support system that accepts them for who they are, it is equally as important that they learn how to navigate through life in environments that are not specifically designed for them.  

My oldest son just turned 7 years old and since he was 3 years old he has expressed an interest in the Solar System and going to Outer Space. As his mother I feel compelled to do whatever is in my power to help him achieve this dream. As we forge ahead into our journey to space, and attempt to integrate them in programs; we are faced with unwelcome stares, rude comments, and other obstacles.

Most recently, the boys attended a program that was not specifically for children on the spectrum. It was the first time that we were going to try and integrate with neuro-typical children. Since it was a new program, the boys had some difficulty adjusting. This is common in children on the spectrum whenever they are trying something new. Due to their difficulty adjusting, we were asked by the program director to drop the program. He very openly shared that other parents had complained about the boys’ loud behavior in the class. We have faced unwanted stares and comments before; however, this is the first time we faced blatant discrimination. Being told your child is not welcome somewhere is one of the most hurtful experiences. I am sure as you read this paragraph; you are probably feeling my pain. You may even wonder where this program is located and who this program director is so that you can give him a piece of your mind. My purpose in sharing this story is not to outrage you. I share because I want to make you aware that there is still more work to be done and we all own a part of it.  

As parents of children with Special Needs we are the bridge between their world and the rest of the world. Although we have made much progress in advocating for their rights, there is still much more work that needs to take place to create an equal and inclusive playing field. In order to create this inclusive world we must play a dual role. First, we must continue to push our children to overcome their own limitations. We need to identify their strengths and potential regardless of their diagnosis and help them to achieve all that they can. More importantly, we must teach them to accept themselves regardless of how other people perceive and receive them. Rejection is tough, and we don’t control how others feel about us and our kids. What we do control is how we feel about ourselves, and how we fill our kids up with as much love and kindness so that they are full of self-esteem and able to face and overcome adversity.

The other part of our role is to keep pushing society to think differently and accept differences.  Autism Awareness must focus on more than just “finding a cure” and trying to point the finger at what is causing the prevalence of this diagnosis. We cannot change their diagnosis, but we can certainly change the way we see their diagnosis and their abilities. We can change our approach on how we are including them in our society. It is no longer enough to have separate Autism specific programs. Our kids should not have to live on the sidelines of our society. They should be welcome in any environment and be given the opportunity to succeed.

We will need more collaboration from all community members. We need parents, family members, neighbors, educators, community leaders, politicians, business owners, and employers to come to the table ready to explore solutions that are going to help us move to a more integrated approach. Preparing our kids for their future begins today. Integration starts today. If their first experience with integration is when they get a job, how do we expect them to succeed? Starting to integrate them into programs today teaches them important life skills that will eventually be essential in the workplace and life. By including them in community outings, sports, and all of the other programs that their neuro-typical peers attend, they will learn skills like impulse control, taking turns, listening, focusing, teamwork, recalling information, following direction, problem solving, etc. Having them involved in these programs early also allows them to learn from their peers, and allows their peers to learn from them and become more inclusive earlier on.

I hope this article will help us to push this dialogue forward and move beyond the debates of causation. We don’t have to wait until the pieces fit; the pieces do fit. We just need to understand how the pieces connect. It’s time to become aware, it’s time to become inclusive, it is time to start building bridges.

FOCUS- The Answer is Right in Front of You

A big challenge for children with Autism is their ability to stay focused. What may take some children 1 hour to accomplish, can take a child with Autism 3 hours. For us, homework is a perfect example of this. We will start off moving quickly and something will distract him. We then have to stop to try and get back on track. This is really what takes the longest, because academically he is strong and can do the homework.

Helping him stay on track and solve the homework problems, has now become my problem too. I have to stay calm and focused to try to figure out the best way to get him on track and ensure that he is truly understanding the material. I can give him the answer, but this won’t help him develop the skills that he needs to have to ensure self sufficiency and long term success. If I show him one way and he doesn’t understand, I try a variety of different ways until I see that he truly understands what we have covered.

Sometimes we both get frustrated, this is when I walk away and take a restroom break to gather my thoughts on how to approach the situation differently. It’s funny but this is where my best thinking happens!

One afternoon we had spent almost 3 hours doing homework, and as I took a much needed break I realized that if I was going to get him to Focus I needed to get focused myself!

I thought about how my son seems to think. If he thinks anything like me then his thoughts run like a spiderweb. One thought can lead to another thought and on to another. My mind is constantly thinking of all of the many different things I am juggling.  If our brains are constantly processing so many different things at once, how can we help improve our focus? How do we get through it all?  

I always seem to remind myself to focus on one thing at a time.
I have to look at the whole problem and then break it down step by step… what do we do first?  Where do we look? etc.
I ask him questions like “What do we do first”? “Where should we look”? This helps us start moving in the right direction.

The same is true for us as parents. Sometimes we want to accomplish so many things, but we won’t accomplish anything if we can’t remain focused. It is so important that we focus on one day at a time.  When we improve our focus we can see the answers before us more clearly.

There is always more than one way to achieve a goal. Look at the situation from all angels, make the decision that is more in line with your priorities and goals. Ask yourself:
What can I do today to make the most out of the day? Do the choices and decisions I am making today align with the outcome that I am trying to achieve?  Do they align with who I am?

By improving our Focus we will gain better insight as to what we are looking for, and by knowing what we are looking for we will then discover where it is we need to look.

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Missing Pieces of Leadership

Prior to the boys’ diagnosis, I was really struggling to lead my team effectively at work. I was consistently frustrated with how the team was performing and at the pace of their progress.

Once the boys were diagnosed, I was so burnt out trying to figure out the balance between leading my team at work and leading my family at home. I decided to take a leave of absence to really wrap my arms around their diagnosis and everything that came along with it (therapies, dr’s appt., etc.)

I originally planned on using my time off to get the boys services situated. I wanted to ensure I did everything in my power to help them continue to learn and grow. Surprisingly, my time off also ended up being a learning and growing experience for myself.

Not only did the boys diagnosis save them; the diagnosis also saved my career. What I realized during that time is that the Autism theories and techniques I was learning about, were actually transferable and applicable at work. At the end of the day Child Development is People Development, and I am in this business because of my passion for helping people grow.

The 7 most important lessons I learned and began applying at work are these:

1) Find out what motivates them; What is their passion

Most children on the spectrum have what some may call obsessions, I personally like to call them passions. Both of my sons have strengths and passions, and I like to help them build on them. For example, my oldest loves the solar system. I help him build on this passion by reading books about it, visiting the observatory, etc. Doing this helps me to connect with him, and let’s me in his world. It helps him know I care and I’m on his side. Helping him leverage and build on his strengths can also prepare him for a career in the future. His dream is actually to be an Astronaut!

Similarly, at work I love to find out what drives my team. What do they love about their job? What comes naturally to them, and where do they perform their best?! When we focus on building on our employees strengths and passions we will see their best performance come out.

2) Teach how they learn

Discovering that my youngest is Hyperlexic really helped me to ensure that his team of teachers and therapists were teaching him in a way that he best understood. We began to see the best progress, as soon as everyone began providing him with more visual aides and written instruction. He went from only speaking in 3 words sentences, to speaking in 5 word sentences.

When working with different individuals on your team, you may notice that some of them catch on really quick and some of them require more support, or more time to start performing to expectation. When you see this happening, it is a good indicator that the individual you are leading learns in a different way. The best thing to do in this situation is to individualize your approach.

I recently lead an individual who had a very difficult time learning new technology. She had to learn several new websites to manage the hiring process. I discovered that she is a visual learner so I printed a few screen shots of the websites for her and highlighted for her where she needed to go and what she needed to fill out.

3) Allow time for Practice

Using the same example as above, I also discovered that this individual is a hands on learner and requires more time for practice. After 6 months of providing her with lots of one on one support, she was able to start navigating the websites required with much confidence and could perform all tasks independently.

This is actually one of my favorite lessons my children have taught me. Prior to the boys’ diagnosis, I was extremely impatient and would get frustrated and take over tasks when I saw that an individual was not immediately performing to expectation.

Our ABA team taught us about breaking tasks down to small steps. This is also called task reduction. When we were potty training the boys we broke it down to small steps like pulling down pants, sitting on the toilet, etc. We would then practice and practice the same step over and over until they could do it naturally on their own. I had to learn this lesson the hard way and through a lot of patience with myself. I learned that I am new at this parenting thing, and I also need to give myself time for practice.

4)Recognize the behaviors and actions you want to see more of

Focus on the positive behaviors your child displays throughout the day and you will get more of those positive behaviors. My oldest son struggles with anxiety and self injurious behaviors. My son’s teacher taught us to not only ignore his bad behaviors, but to really make it a big deal when he does something right. “Oh I like how you are sitting nicely!” The more we look for the things that our children do well, the more those positive behaviors increase. What you focus on grows!

The same can be said with the performance of our teams. If we only focus on their poor performance, they will feel defeated and perhaps stop trying. We need to be able to balance our approach. Catch them doing something right and tell them.

I have recently been working with one of my peers on how he provides feedback to his team. He is consistently being told that he is too direct and abresive. He had me sit in on a conversation between him and one of his employees. The conversation went very well. After we were done speaking to the individual I told him I thought he did well. More specifically I highlighted the behaviors for him “you listened to what she had to say”, “you owned up to your mistakes”, “you thanked her for her feedback”. I want him to know when he is doing it right so he understands how to continue to improve his approach.

5)Celebrate small wins

Stopping to celebrate the progress of our child’s development journey is so important. My oldest son can be very resistant when doing his homework. I usually try to spread out the homework assignments so we are not trying to cram so much at once. I congratulate him after each page is done, but keep pushing him to complete more!

Once again, doing this with our teams is also important because it fuels their drive to keep pushing to achieve those bigger goals. Working in a retail environment we have many goals to achieve. The most important goal is to beat our sales results. It can be very discouraging when we are not achieving that bigger goal. Instead, I focus on the smaller goals we are achieving such as employee engagement, and customer experience. I celebrate and highlight those areas, then ask my team “what’s next”!? Start small… Go BIG!

6)Accept them for who they are, but Expect them to become who they can be

Accepting our children’s strengths and weaknesses does not mean that we stop pushing the boundaries of what is possible.  We must maintain a balance of what we expect from our children and accepting our children. Accepting them as a person does not mean we allow negative behaviors to continue. On the other hand, expecting them them to become better does not mean we do not accept them and love them for who they are. We must learn to balance the two to help them continue to grow.

It is the same way with our teams. They want to feel connected to us on a personal level, and although we can and should do that, it is not enough. Our people need to be clear on job expectations. They need to understand that everyone on the team plays a role, and be clear on what their role is. This is foundational. Once they understand the basics of their role, then we can continue to layer things on and further their development.

7) Individualize your Leadership

Lastly, Individualize your Leadership.
Just because you earned your leadership with one individual does not mean you will earn it with everyone you lead. Leadership is not just earned through one act, one time. It is earned through the consistency of your character, actions, and individualization of your approach.

Each child on the spectrum has different strengths and deficits. Individual development plans are needed in the school environment to help them succeed. No two children have the same nee

The same can be said about our people. All of our employees have different needs. It is critical that we adjust our style and approach in order to earn our leadership with each individual on our team.

These lessons have helped the boys make incredible progress and have grown me as a mother and a leader.IMG_0248.PNG

More than Words

“Communication happens when one person sends a message to another person.  You can send the message in a variety of ways, including facial expressions, gestures, or words” Fern Sussman.

Many of our kids on the spectrum are challenged with verbal communication.  I know that their inability to verbally communicate their needs, wants, and thoughts can be a huge barrier, and source of frustration for us and for them.  Both of my sons have different challenges with verbal communication, but Joaquin is the one that has struggled the most.  When he was first diagnosed at age 2 he was completely non-verbal.  In the last 3 years he has acquired a lot of language and words. 6 months ago he was primarily communicating with 1 to 2 word phrases, and today he can communicate in up to 5 words. We have come a long way!

Before he could verbally communicate he did attempt to communicate in other ways. His preferred method of communication then, and even today, is to pull and guide us. He will point, and he will hand us the things that he wants. These behaviors and actions are communication. Although, he is able to use these alternative methods of communication, as a parent I have always had a desire to hear him use his voice. I longed for the day, in which I would hear his little voice say “I love you”.

Even when he had no words, I still seemed to know exactly what he wanted. As a mother, my intuition has guided me into knowing his needs and desires. Our intuition allows us to listen to things with more than just our ears, and to see with more than just our eyes. Our intuition allows us to see with our heart and spirit. Through this lens we see the energy and life that flows through our child. Even if your child never learns to speak, and never utters the words “I love you“, you will know they love you through the connection you have built with them. The connection between you allows you to understand that which can not be verbally said, because Love defies normal means of communication.

I know it’s difficult to raise a child with limited to no verbal ability, but just because they can’t speak does not mean they have nothing to say. Remember that there is a form of communication that transcends words, it is called LOVE.

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